The Juvenile Justice Professional's Guide to
Human Subjects Protection and the IRB Process
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Before We Begin
Nuremberg Code
Lets' Begin
History
Research
Human Research Subjects
Ethical Principals of the Belmont Report
The Institutional Review Board (IRB)
Protecting Human Subjects from Harm
The Consent Process
Privacy Protections
Health Insurance Portability and Accountability Act of 1996 (HIPAA)
Family Educational Rights and Privacy Act (FERPA)
Protection of Pupil Rights Admendment (PPRA)
Related Federal Youth Privacy Protection Laws
Confidentiality of Secondary Youth Information
Statistical Disclosure Limitation Techniques
Restricted Data Access Measures
Privacy Certificate
Information Transfer Agreement
Responsibility for Protecting Human Subjects
Responsibilities of the Institutional Review Board
Responsibilities of the Researcher
Responsibilities of the Data Lending Agency
Responsibilities of the Institution
Administration of the Institutional Review Board
IRB Membership
IRB Meetings
IRB Voting
IRB Research Review Process
Types of IRB Review
Issues Relevant to the IRB Review Process
Modification or Amendment of the Research Project
Project Suspension or Termination
Re-certification of Research Project
Non-compliance With Human Subjects Regulations
Assurance and Educational Training
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